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Researcher's Guide

The 2019 Researcher's Guide to the USRDS Database is currently available. The downloadable PDF files containing the chapters are in Adobe Acrobat. You will need the Acrobat Reader to view the documents.

2019 Researcher's Guide to the USRDS Database (PDF)

Appendix A: USRDS Products and Services

Appendix B: Data File Descriptions

Appendix C: Data Formatting

Appendix D: Data Collection Forms

    1. CMS ESRD Forms
    2. CDC National Surveillance of Dialysis-Associated Diseases Forms
    3. OPTN Data Collection Forms
    4. USRDS Special Study Forms

Standard Analysis Files (SAF) Data Request

Data Collection Forms

Archives:

The 2016 Researcher's Guide to the USRDS Database is currently available.  The downloadable PDF files containing the chapters are in Adobe Acrobat, you will need the reader that will allow you to look at the documents. Click here to view the entire 2016 Researcher's Guide excluding forms.

2016 Researcher's Guide to the USRDS Database (PDF)

Appendix A: USRDS Products and Services

Appendix B: Data File Descriptions

Appendix C: Data Formatting

Appendix D: Data Collection Forms

    1. CMS ESRD Forms
    2. CDC National Surveillance of Dialysis-Associated Diseases Forms
    3. OPTN Data Collection Forms 
    4. USRDS Special Study Forms 

Standard Analysis File (SAF) Data Request

The 2015 Researcher's Guide to the USRDS Database is currently available.  The downloadable PDF files containing the chapters are in Adobe Acrobat, you will need the reader that will allow you to look at the documents. Click here to view the entire 2015 Researcher's Guide excluding forms.

2015 Researcher's Guide to the USRDS Database (PDF)

Appendix A: USRDS Products and Services

Appendix B: Data File Descriptions

Appendix C: Data Formatting

Appendix D: Data Collection Forms

    1. CMS ESRD Forms
    2. CDC National Surveillance of Dialysis-Associated Diseases Forms
    3. OPTN Data Collection Forms 
    4. USRDS Special Study Forms 

Standard Analysis File (SAF) Data Request

The 2014 Researcher's Guide to the USRDS Database is currently available.  The downloadable PDF files containing the chapters are in Adobe Acrobat, you will need the reader that will allow you to look at the documents. Click here to view the entire 2014 Researcher's Guide excluding forms.

2014 Researcher's Guide to the USRDS Database (Updated 9/10/2015. Now includes Medicare Claims) - PDF

Appendix A: USRDS Products and Services

Appendix B: Data File Descriptions

Appendix C: Data Formatting

Appendix D: Data Collection Forms

    1. CMS ESRD Forms
    2. CDC National Surveillance of Dialysis-Associated Diseases Forms
    3. OPTN Data Collection Forms 
    4. USRDS Special Study Forms **

The 2013 Researcher's Guide to the USRDS Database is currently available.  The downloadable PDF files containing the chapters are in Adobe Acrobat, you will need the reader that will allow you to look at the documents. Click here to view the entire 2013 Researcher's Guide excluding forms.

2013 Researcher's Guide to the USRDS Database (PDF)

This Researcher's Guide to the USRDS Database is designed to assist those interested in using USRDS data to perform their own analyses.
• Page 5 Introduction
• Page 7 Getting Started
• Page 17 Section 1 · ESRD Data Sources and the USRDS Database System
• Page 22 Section 2 · ESRD Patients
• Page 24 Section 3 · Treatment History
• Page 28 Section 4 · Payor History
• Page 30 Section 5 · Transplant Process & Outcomes
• Page 34 Section 6 · Morbidity & Hospitalization
• Page 36 Section 7 · Survival & Mortality
• Page 37 Section 8 · Providers
• Page 39 Section 9 · CKD Cohort
• Page 41 Section 10 · Comprehensive Dialysis Study
• Page 41 Section 11 · Medicare Prescription Drug

Appendices

• Page 47 A: USRDS Products & Services
• Page 61 B: Medicare Claim
• Page 71 C: Statistical Methods

Data File Descriptions

Data Formatting 

ESRD Data Forms & Glossary (List Only)**

Previous CMS 2728-Chronic Renal Disease Medical Evidence Report
CMS 2728-ESRD Medical Evidence Report Medicare Entitlement &/or Patient Registration. v. 1995
CMS 2728-ESRD Medical Evidence Report Medicare Entitlement &/or Patient Registration. v. 2005
CMS 2746-ESRD Death Notification (1996)
CMS 2746-ESRD Death Notification (2004)
CMS 2744-ESRD Facility Survey
UB92-CMS 1450-Uniform Bill
CMS 1500-Health Insurance Claim Form
CDC National Surveillance of Dialysis-Associated Diseases Form
UNOS Transplant Forms
Data collection form used for the Comprehensive Dialysis Study (Food)
Data collection form used for the Comprehensive Dialysis Study (Patient)
Download all ESRD forms
         Note: Large file, will take some time to download.
Transplant Candidate Registration Worksheet
Transplant Recipient Registration Worksheet
Transplant Recipient Follow-Up Worksheet

Special Study Data Forms

Download forms **
Note: Large file, will take some time to download 

DMMS Wave Data Forms

The 2012 Researcher's Guide to the USRDS Database is currently available.  The downloadable PDF files containing the chapters are in Adobe Acrobat, you will need the reader that will allow you to look at the documents. Click here to view the entire 2012 Researcher's Guide excluding forms.

2012 Researcher's Guide to the USRDS Database (PDF)

This Researcher's Guide to the USRDS Database is designed to assist those interested in using USRDS data to perform their own analyses.
• Page 5 Introduction
• Page 7 Getting Started
• Page 17 Section 1 · ESRD Data Sources and the USRDS Database System
• Page 22 Section 2 · ESRD Patients
• Page 24 Section 3 · Treatment History
• Page 28 Section 4 · Payor History
• Page 30 Section 5 · Transplant Process & Outcomes
• Page 33 Section 6 · Morbidity & Hospitalization
• Page 35 Section 7 · Survival & Mortality
• Page 36 Section 8 · Providers
• Page 38 Section 9 · CKD Cohort
• Page 40 Section 10 · Comprehensive Dialysis Study
• Page 40 Section 11 · Medicare Prescription Drug

Appendices

• Page 45 A: USRDS Products & Services
• Page 59 B: Medicare Claim
• Page 69 C: Statistical Methods

Data File Descriptions

Data Formatting

ESRD Data Forms & Glossary (List Only)

Previous CMS 2728-Chronic Renal Disease Medical Evidence Report
CMS 2728-ESRD Medical Evidence Report Medicare Entitlement &/or Patient Registration. v. 1995
CMS 2728-ESRD Medical Evidence Report Medicare Entitlement &/or Patient Registration. v. 2005
CMS 2746-ESRD Death Notification (1996)
CMS 2746-ESRD Death Notification (2004)
CMS 2744-ESRD Facility Survey
UB92-CMS 1450-Uniform Bill
CMS 1500-Health Insurance Claim Form
CDC National Surveillance of Dialysis-Associated Diseases Form
UNOS Transplant Forms
Data collection form used for the Comprehensive Dialysis Study (Food)
Data collection form used for the Comprehensive Dialysis Study (Patient)
Download all ESRD forms
         Note: Large file, will take some time to download.
Transplant Candidate Registration Worksheet
Transplant Recipient Registration Worksheet
Transplant Recipient Follow-Up Worksheet

Special Study Data Forms

Download forms **
Note: Large file, will take some time to download 

DMMS Wave Data Forms

The 2011 Researcher's Guide to the USRDS Database is currently available.  The downloadable PDF files containing the chapters are in Adobe Acrobat, you will need the reader that will allow you to look at the documents. Click here to view the entire 2011 Researcher's Guide excluding forms.

2011 Researcher's Guide to the USRDS Database (PDF)

This Researcher's Guide to the USRDS Database is designed to assist those interested in using USRDS data to perform their own analyses.
• Getting Started
• Sections 1-11
• Page 4 Introduction
• Page 7 Getting Started
• Page 17 Section 1 · ESRD Data Sources and the USRDS Database System
• Page 20 Section 2 · ESRD Patients
• Page 22 Section 3 · Treatment History
• Page 24 Section 4 · Payor History
• Page 26 Section 5 · Transplant Process & Outcomes
• Page 28 Section 6 · Morbidity & Hospitalization
• Page 29 Section 7 · Survival & Mortality
• Page 30 Section 8 · Providers
• Page 31 Section 9 · Disease-Based Cohort
• Page 32 Section 10 · Comprehensive Dialysis Study
• Page 33 Section 11 · Medicare Prescription Drug

Appendices

• USRDS Products & Services
• Medicare Claim
• Statistical Methods

Data File Descriptions

Data Formatting

ESRD Data Forms & Glossary (List Only)

Previous CMS 2728-Chronic Renal Disease Medical Evidence Report
CMS 2728-ESRD Medical Evidence Report Medicare Entitlement &/or Patient Registration. v. 1995
CMS 2728-ESRD Medical Evidence Report Medicare Entitlement &/or Patient Registration. v. 2005
CMS 2746-ESRD Death Notification (1996)
CMS 2746-ESRD Death Notification (2004)
CMS 2744-ESRD Facility Survey
UB92-CMS 1450-Uniform Bill
CMS 1500-Health Insurance Claim Form
CDC National Surveillance of Dialysis-Associated Diseases Form
UNOS Transplant Forms
Data collection form used for the Comprehensive Dialysis Study (Food)
Data collection form used for the Comprehensive Dialysis Study (Patient)
Download all ESRD forms
         Note: Large file, will take some time to download.
Transplant Candidate Registration Worksheet
Transplant Recipient Registration Worksheet
Transplant Recipient Follow-Up Worksheet

Special Study Data Forms

Download forms **
Note: Large file, will take some time to download 

DMMS Wave Data Forms

The 2010 Researcher's Guide to the USRDS Database is currently available.  The downloadable PDF files containing the chapters are in Adobe Acrobat, you will need the reader that will allow you to look at the documents. Click here to view the entire 2010 Researcher's Guide excluding forms.

2010 Researcher's Guide to the USRDS Database (PDF)

This Researcher's Guide to the USRDS Database is designed to assist those interested in using USRDS data to perform their own analyses.

• Page 4 Introduction
• Page 7 Getting Started
• Page 18 Section 1 · ESRD Data Sources and the USRDS Database System
• Page 21 Section 2 · ESRD Patients
• Page 22 Section 3 · Treatment History
• Page 25 Section 4 · Payor History
• Page 26 Section 5 · Transplant Process and Outcomes
• Page 28 Section 6 · Morbidity and Hospitalization
• Page 30 Section 7 · Survival and Mortality
• Page 31 Section 8 · Providers
• Page 32 Section 9 · Disease-Based Cohort
• Page 33 Section 10 · Comprehensive Dialysis Study

APPENDICES
• Page 35 A: USRDS Products and Services
• Page 45 B: Medicare Claims
• Page 53 C: Statistical Methods
• Page 57 D: Data File Descriptions
• Page 236 E: Data Formatting
• Page 406 F: Data Forms
• Page 410 G: Glossary

Appendices

• USRDS Products & Services
• Medicare Claim
• Statistical Methods

Data File Descriptions

Data Formatting

ESRD Data Forms & Glossary (List Only)